Main content Cystic Fibrosis

    Cystic Fibrosis



    Other Places To Get Help

    Organizations

    Cystic Fibrosis Foundation
    6931 Arlington Road
    Bethesda, MD  20814
    Phone: 1-800-FIGHT CF (1-800-344-4823)
    (301) 951-4422
    Fax: (301) 951-6378
    Email: info@cff.org
    Web Address: www.cff.org
     

    The CFF coordinates, supports, and accredits cystic fibrosis centers and programs, supports research, and advocates for patients. You can find information about things like treatment, care centers, clinical trials, and staying healthy. You can also buy medicines from the online pharmacy.


    Genetics Home Reference, U.S. National Library of Medicine
    8600 Rockville Pike
    Bethesda, MD  20894
    Phone: 1-888-FIND-NLM (1-888-346-3656)
    Fax: (301) 402-1384
    TDD: 1-800-735-2258
    Web Address: www.ghr.nlm.nih.gov
     

    The Genetics Home Reference provides information on hundreds of genetic conditions. The website has many tools for learning about human genetics and the way genetic changes can cause disease. It also has links to additional resources for people who have genetic conditions and for their families.


    KidsHealth for Parents, Children, and Teens
    10140 Centurion Parkway North
    Jacksonville, FL  32256
    Phone: (904) 697-4100
    Fax: (904) 697-4220
    Web Address: www.kidshealth.org
     

    This website is sponsored by the Nemours Foundation. It has a wide range of information about children's health, from allergies and diseases to normal growth and development (birth to adolescence). This website offers separate areas for kids, teens, and parents, each providing age-appropriate information that the child or parent can understand. You can sign up to get weekly emails about your area of interest.


    March of Dimes
    1275 Mamaroneck Avenue
    White Plains, NY  10605
    Phone: (914) 997-4488
    Web Address: www.marchofdimes.com
     

    The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's website has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care.


    National Heart, Lung, and Blood Institute (NHLBI)
    P.O. Box 30105
    Bethesda, MD  20824-0105
    Phone: (301) 592-8573
    Fax: (240) 629-3246
    TDD: (240) 629-3255
    Email: nhlbiinfo@nhlbi.nih.gov
    Web Address: www.nhlbi.nih.gov
     

    The U.S. National Heart, Lung, and Blood Institute (NHLBI) information center offers information and publications about preventing and treating:

    • Diseases affecting the heart and circulation, such as heart attacks, high cholesterol, high blood pressure, peripheral artery disease, and heart problems present at birth (congenital heart diseases).
    • Diseases that affect the lungs, such as asthma, chronic obstructive pulmonary disease (COPD), emphysema, sleep apnea, and pneumonia.
    • Diseases that affect the blood, such as anemia, hemochromatosis, hemophilia, thalassemia, and von Willebrand disease.



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