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    Down Syndrome

    Down Syndrome



    Other Places To Get Help

    Organizations

    Centers for Disease Control and Prevention (CDC): National Center on Birth Defects and Developmental Disabilities (NCBDDD)
    1600 Clifton Road, MS E-87
    Atlanta, GA  30333
    Phone: 1-800-CDC-INFO (1-800-232-4636)
    TDD: 1-888-232-6348
    Email: cdcinfo@cdc.gov
    Web Address: www.cdc.gov/ncbddd
     

    NCBDDD aims to find the cause of and prevent birth defects and developmental disabilities. This agency works to help people of all ages with disabilities live to the fullest. The website has information on many topics, including genetics, autism, ADHD, fetal alcohol spectrum disorders, diabetes and pregnancy, blood disorders, and hearing loss.


    March of Dimes
    1275 Mamaroneck Avenue
    White Plains, NY  10605
    Phone: (914) 997-4488
    Web Address: www.marchofdimes.com
     

    The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's website has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care.


    National Dissemination Center for Children with Disabilities
    1825 Connecticut Avenue NW
    Suite 700
    Washington, DC  20009
    Phone: 1-800-695-0285 (voice/TTY)
    (202) 884-8200 (voice/TTY)
    Fax: (202) 884-8441
    Email: nichcy@fhi360.org
    Web Address: http://nichcy.org
     

    The National Dissemination Center for Children with Disabilities (NICHCY) is the national information and referral center that provides information on disabilities and disability-related issues for families and professionals. The focus is on children and youth, birth to age 22.


    National Down Syndrome Congress (NDSC)
    1370 Center Drive
    Suite 102
    Atlanta, GA  30338
    Phone: 1-800-232-NDSC (1-800-232-6372)
    (770) 604-9500
    Email: info@ndsccenter.org
    Web Address: www.ndsccenter.org
     

    The National Down Syndrome Congress (NDSC) is a national advocacy organization and a major source of information, support, and empowerment for people with Down syndrome and their families. NDSC's goal is to create a climate in which all people will recognize and embrace the value and dignity of those with Down syndrome. NDSC can provide information on the nearest Down syndrome clinic in your area.


    National Down Syndrome Society
    666 Broadway, 8th floor
    New York, NY  10012
    Phone: 1-800-221-4602
    Email: info@ndss.org
    Web Address: www.ndss.org
     

    The National Down Syndrome Society (NDSS) wants to help people with Down syndrome enhance their quality of life, realize their life aspirations, and become valued members of the community. NDSS advocates for research, policies, and education to help people with Down Syndrome. The Web site has information about health care, school and community life, the transition to adulthood, behavior management, family issues, friendships, and more.




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